Monday, 7 September 2015

September 2015 - childhood cancer awareness month

I haven't had time to write on here these last few months. I've been completing a university module for work, to qualify me as a best interest assessor under the mental capacity act, just handed it in last week! Fingers crossed! 

I have also been busy getting a power point presentation ready. I am lucky to have a friend Lynne Rhodes-Holme whom met me for the first time in April 2012, giving a presentation to Otley Rotary club only hours after Harry's 9 hour op to remove his tumour, help set up 'Harry's legacy' which has been launched in conjunction with the Rotary club to raise money for Candlelighters. I gave my first presentation under this umbrella a few weeks ago to Leeds Rotary club, which is in its centenieth year and they have chosen to support candlelighters for their charity of the year. They gave £5000 to Harry's legacy which we are truly grateful for, in exchange for the presentation I gave with Lynne Rhodes- Holmes! Hopefully there will be lots more opportunities to raise money over this next year!

We have also had a fab summer with Callum during the 6.5 week hols! Will write more over next week, but thought I'd share my picture of Callum's first day back at school today. Callum has just started year 1, the year that harry is in the picture and the last year he entered. Feels strange to think that at the end of this school year, Callum will be older then Harry ever was on this earth. Though Harry will always be Callum's older brother. He talks lots about Harry. He cries about his loss of harry too. 2 miles up a hill in Kettlewell he sobbed his heart out for Harry and said  if harry was still alive and poorly, then he would give the money he's been saving up, to help make Harry better. We all had tears running down our cheeks and shared a group hug! Just because Callum is young, it doesn't mean he is too young to grieve and have that big MISS that we all feel. 
It is Harry's 8 th birthday on Saturday too, so an emotional week. I remember 8 years ago, feeling so excited about the prospect of meeting our baby, harry was born 2 weeks early, so my wait wasn't long! 
I also remember this time 4 years ago. Harry had, had night sweats and had been waking up the night, then seemed ok for his birthday. Then he seemed to be getting withdrawn, then he had intermittent pains in his legs, abdomen and constant temperatures. I remember going out of my mind with anxiety as Harry turned from our gregarious boy into a lifeless being laid out on our sofa.
September is childhood cancer awareness month. Gold is the colour for childhood cancer.

A poem, written by a cancer mum. The words are so true. Cancer is so horrible, most don't want to imagine, but sadly it was our reality and the reality of too many.

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